by
wensum24
@ 05/07/2006 - 11:00:47
Morning all~~
As you know, from my posts tediously outlining ailments, my spine is broken with complications besides. This, the MRI confirmed, and was relayed to me by my busy consultant.
This week, I'm recovering painfully slowly from a big operation, and smaller surgery. There are times between the many surgeries, when there seems nothing the NHS can do but send me home for a day or two, and then bring me back in for a time, a pattern repeated over and over, which does at least allow me some moments at home, albeit brief. (It allowed me to photograph my garden and kk's tree too.)
Well, this week when I feel I need more help than usual, I've encountered things I'd rather never see, but feel great empathy with those that have;
Every week is not only a battle with my intensifying pain, loss of mobility and numbness of right leg, but also more pressingly, with the NHS themselves who seem hellbent on minimising my problems and actually making ME feel ashamed of myself...some night's I have sat upright in bed feeling just that...because I have got a weakness of physical body beyond my control, reliant on this nation's once proud NHS.
But daylight usually brings me to my senses again, thank goodness, and I see nearby faces, hurt by the same injury and denial from doctor's.
Recently, I've been given a long course of hydrotherapy, because in the physiotherapist's own words, "...there is not much we can do". This is a refreshing activity, almost impossible to achieve, but a great challenge all the same. The physio is good too, no faulting his patience and joviality.
However, and this is a deep breath however, I need walking sticks to move between wards, without them I'm a cabbage patch troll, but a heartless remark from a 'nurse' told me to, "leave them in the corner and make my way to the poolside."
I ignored it.
She barked again, " Do you need those, really ? "
"Yes" was my simple reply.
"Leave them with the other's" she insisted.
My eyes became Italianate, (before the semi-final win!!), as I struggled without them. I resembled Baloo from Jungle Book, as if I were trying to scratch my back against the wall, such was my distress and pain. No-one came to help, and I reached the pool, sweating, and white from pain.
Is this right? My spine hurts twice as much, not from the pool, but from this two minute performance between reception and pool.
That's not all, after the session in hydrotherapy, I was ordered to shower and drink water. My stick was still in reception, out of reach of even Spaghettiman and I hinted to the 'nurse' "My stick is still here?" to which she said, 'helpfully', "yes, over there".
I'm not lazy, not selfish nor impossing in any shape or form, but require some simple acknowledgements and assistance, or else I'll definitely slide down the slippery, jaggered spine of lifelessness.
Upon leaving, I said, "Thank you" which was ignored, followed by a louder cry of "Cheers" which too appeared reply-resistant.
Afterwards, my temper was 'hot' and the deputy consultant referred to 'my back problem' and "this back pain of yours" ...that sent my gasket to friends reunited where it met my senses head-on.
Why oh why do the hospital tell me my spine is broken, show me MRI pictures of the break, send me to various locations for operations, then refer to my "back pain" and "back problem" with no positive words that they will perform the direct operation on the spine?
My operations thus far have been to sort out things which have developed as a result of the time that has elapsed since being diagnosed with a "back problem" 23 months ago.
There appears no hope that they will help my spine, only the parts being damaged by it's broken position.
My tears are not forthcoming, but the emotions that go with it, are rubbing salt into my wounds.